Tuesday, July 30, 2013

On Fingernails and the X

Something that has always caught my attention in Weston's post-death pictures is the length of my fingernails:




They were so much longer than usual.

The moment a woman becomes pregnant, her body is no longer hers alone. She shares it for nine months, longer if the baby breastfeeds. Pregnant women usually radiate life, health, and vitality. People talk about that pregnancy glow. 

Perhaps a more appropriate word than "share" is "surrender." The pregnant woman surrenders her body. When the baby is born, she surrenders her time. And, at some point between surrendering her body and her time, she surrenders her heart.

The pregnant mother radiates life because she is literally growing a baby. The growth is invisible, except for belly size and ultrasound pictures, until she gives birth.

My pregnancy with Weston was vastly different. I became unhealthier than I have ever been to give him life. Believe it or not, spending months in bed takes a huge physical toll (and we won't even get into the mental/emotional/spiritual toll here). Toward the end of my pregnancy, my muscles had atrophied. I would lift up my leg and see sagging skin. Although my belly grew, I actually lost weight. Weeks in a hospital bed began to cause excruciating back pain to the point where I needed physical therapy. I couldn't sleep. I wasn't allowed to walk except to the shower. Lying in bed posed a danger of blood clots, so I had to wear compression socks whenever I was in bed.

And, of course, the blood. I lost this life-giving substance continually for three months. Blood loss was the root of my anxiety. More blood loss meant a higher likelihood of early labor, which, at that time, would mean certain death for Weston. I could often feel blood coursing out of me; it felt like life leaving my body. Too much blood loss inevitably led to invasive and traumatic exams, always in the middle of the night.

But, while I experienced this physical decay, Weston grew and thrived inside of me. Every week he grew. The ultrasounds confirmed it, but I could tell by the way my pajama pants grew tighter, even as I lost weight. Toward the end of my pregnancy, his kicks grew stronger. He'd fight to get away from the Doppler every time. And that heartbeat was music to my ears, twice a day. It was so strong, so constant.

Until July 7, 2012, when my physical decline caught up with him and left him literally gasping for air. We both could have died that night. I was no longer enough. I was sawed in half so that he could be rescued from the tomb that my body had become.

Then, the tables turned. In an instant, this thriving 24-week-old baby became a micro-preemie on a ventilator, fighting for his life. As for me, I was stitched up, and I began to grow stronger immediately.

My one-pound six-ounce baby dropped down to one pound two ounces (I was told this is normal, but there's not a whole lot of wiggle room there). He was always connected to at least four tubes, with two down his throat. His lungs started deteriorating as soon as he was born. When he finally started gaining weight, his lungs were so bad that he had to be put on an oscillator: the highest level of breathing assistance. He hated the oscillator so much that he had to be sedated. As he got older, his list of medical issues grew longer. The list became too long on July 28, 2012.

On the other hand, my physical strength returned. I could finally walk again. I stopped bleeding. My incision started to heal as soon as it was stitched up. Without the constant blood loss, my nutrient levels returned to normal. The color in my face returned. I got to go home and sleep in my own bed.

My milk came in: the very definition of life and vitality. I pumped an entire freezer full of milk, and Weston consumed maybe an ounce of it.

And, my fingernails. I had been on prenatal vitamins for months, and I continued taking them because I was "breastfeeding." The vitamins make my fingernails stronger in general, but they really started growing after Weston was born. You can see the result in the pictures.

And that is why my fingernails capture my attention in the photos every time. There is a dead baby, my dead baby. They are, quite literally, pictures of death. Yet the hands that hold that baby are stronger and healthier than they had been in months. The contrast is stark.

Perhaps the body cannot always fully distinguish between love and grief. (Actually, there is nothing to distinguish: grief comes from love.) After Weston died, my milk supply multiplied exponentially because I had held him all day. My body did not know that the baby no longer needed the milk. I became a literal fountain of life. For nothing.

Grief does unbelievable things to the body. I won't get into all of that here. But I started running again anyway, about a month after Weston died. And the physical capabilities of my body just increased from there. Less than six months later, I ran my first half marathon in about five years, only four minutes slower than my fastest time ever.

It takes multiple systems of the human body working together to successfully run a half marathon. As I crested the final hill in that race, with the entire valley before my eyes, I marveled at the central players of my ability at that moment: my lungs. Weston's lungs were not enough. Somehow, mine had become enough to power me through 13.1 fast miles. I breathed for both of us.

Our physical trajectories met in the middle like an X, ever so briefly, last July. As a result, Weston's DNA will be in my body for the rest of my life. One year later, I continue to carry his heart in my heart. They both inhabit the middle of that X.

Sunday, July 28, 2013

Blown Away

I never thought I would use the above words to describe today, the first anniversary of Weston's death. Today was a day I was dreading more than any other, almost. On other anniversaries, we could at least think back a year and remember a time that we still had hope. But July 28, 2012 was the death of hope, the death of a future, the death of our son, the natural order of things turned completely upside down.

Yet, today I feel grateful. Profoundly sad. Blessed. Full. Peaceful. Empty. And, yes, blown away.

Surprisingly, I haven't really been reminiscing about "this time last year" for the last three weeks. It's surprising because it was the three weeks our son was with us, and I thought I'd relive every moment. I remember the big events during pregnancy. I remember when I was discharged from the hospital and had to leave without Weston (July 11, 2012). I remember the date that Weston was diagnosed with chronic lung disease (July 21, 2012). But I don't remember the date that I held him, although I remember everything about those wonderful fifteen minutes.

But I did start reminiscing about Weston's last weekend. I went to lunch with friends two days before he died. I don't feel guilty about it, but I do feel sad: those are a couple of hours I could and would have spent with Weston if I knew he would be dead less than 48 hours later. I remember his last full day on earth: the incredibly difficult day when he was facing so many challenges. My last nightly phone call to the NICU for a status report before I went to bed. My happiness at hearing how well he was doing at that time.

I remember Karen's steadfast presence. Things were in such upheaval, but we didn't have to worry about anything on the home front with her being here. I remember telling her the good news after that last phone call, about how his oxygen levels were the best they'd been in a couple of days: then I told her, "I don't want to get too excited about this. I don't want to get my hopes up."

I remember that our printer broke the night Weston died. I don't know why I wanted/needed to use it. But Karen was trying to fix it, and we couldn't figure it out. I sat there in the chair, doing everything in my power not to scream, grab the printer, and slam it into the wall. (We finally replaced that stupid printer about a month ago.)

There are so many other things I remember about that day that I will doubtlessly process in the next several days/weeks. I am still working through the events of our week in Colorado. There is a lot whirling around this heart of mine right now.

But, today. At least I can record the events and how I feel about them now. Strangely, everything about today makes sense, even as the entire course of our lives since 2012 will always remain a holy mystery.

First, I woke up to this:


Shannon had taken this picture down from our living room wall and set it up on the kitchen counter, along with a candle that he said he wanted to stay lit all day.

Shannon and I have known for a while that we wanted to send flowers to the NICU today. We also knew that we are not emotionally ready to go the NICU ourselves, so we asked for help. Several friends volunteered to drop off the flowers, and my friends D and P ended up doing it. I met them at AJ's this morning to give them the flowers and instructions. When we met up, the flowers looked like this:


We chatted for about half an hour, at which time the flowers looked like this:


We could literally see them transforming before our eyes. After seeing a rainbow from our back porch the night Weston died, I really wanted to see one today. These flowers are my desert rainbow. This is when I started feeling blown away.

As it turns out, D and P met C at the NICU today. C was one of Weston's nurses. We only met her the day before he died, but she ended up playing a huge role in Weston's story, and she holds a special place in my heart. I will never forget walking through the NICU doors that morning to see her standing there, compassionately taking me by the arm, and saying, "You need to come with me quickly. Don't scrub in." We knew then that it was the end.

How perfect that C was there today. Blown away again.

After I left AJ's, I checked Facebook. My wall was filled with pictures of Weston's name written in rocks, sticks, baby/kid toys, blocks, celery. Blown away again. These pictures continued popping up all day. Blown away.

I went to Starbucks and started to read St. John of the Cross' Dark Night of the Soul. Perfect timing. Much to ponder. Blown away.

After I saw all of these beautiful images on Facebook, I decided to go to church. I've hardly been this past year. But after seeing so many wonderful messages from church friends (and I know D and P through church too), I knew I needed to go. I was wearing shorts and a semi-backless shirt. Those of you who know me well know that I ALWAYS dress up for church. It's part of my Texas roots, I suppose. I don't think God minded the shorts (or the fact that I was over 30 minutes late), and Shannon was happy to see me there too. We cried through most of the service.

Scroll back up to the picture of Weston's photo with the candle. It looked like that when I got home from church. Yep, we forgot to blow out the candle when we left, and it burned unattended for over two hours. Our house is still standing. Blown away again (no pun intended there).

The pictures continued to pour in, text messages came, emails, special deliveries at our door, and on and on. Caroline had a hard time falling asleep, as I have lately, but she finally dropped off and took a good nap. I fell asleep for a while too.

After naps, we went to the hospital chapel where we spent many tense, desperate hours during Weston's life. It's also where our church organized a prayer event and where we went to celebrate the life of Baby R. (This time, we blew out the real candle and lit the LED candle to "burn" while we were gone.) There is a huge statue in the middle of the roundabout in front of the hospital's main entrance that, surprisingly, I had never noticed before. I pointed it out to my family, and Caroline asked, "Is that God?" We got closer and read that it's one of the saints holding the Christ child. But the plaque is wrong: it's actually Jesus holding Weston. Blown away again.

My sister is an incredibly gifted poet. She has written several poems over the last year about Weston and how his life and death has touched her and her children. She sent them to us a couple of days ago, and we opened and read them in the chapel today. I wish I could think of a more poetic phrase than "blown away" to express how the poems affected me, but that's the best I can do right now.

I read the first half of Lamentations 3 from the Bible there too. Verses 22 and 23 have really spoken to me since my days in the hospital before Weston was born last year:


Because of the Lord's great love we are not consumed,
for his compassions never fail.
They are new every morning;
great is your faithfulness.

But the first half of the chapter talks about the great distress and abandonment from God that the author was feeling. It's how I have felt this past year. The author talks about horrible things that God did to him. I don't know if God literally did those things, or if he just let them happen. On one level, it doesn't matter; however these things happen, they produce suffering of the greatest magnitude. But I'd like to believe that God isn't behind these horrible things. He didn't kill Weston.

What I appreciate about the first half of Lamentations 3 is that the feelings are real. The author wrote the book after the ugly fall of Jerusalem that resulted in unspeakable horror: widespread murder of children, hunger, poverty, cannibalism, etc. True accusations or not, God can handle such anger thrown at him, as I have felt for the last 365 days, and remains compassionate and faithful. This compassion and faithfulness was made evident over and over to me this month.


It didn't rain in Phoenix today, but there were rainbows in Ft. Collins, Flagstaff, and a double rainbow in Albuquerque. Thanks to D, J, and M for sharing. I "saw" my rainbows!

Many, many tears were shed today. We continue to be amazed at the outpouring of love we've felt today, but it doesn't fill the hole in our hearts. We miss Weston profoundly and always will. Like the pictures from today, his name is written on our hearts. I hope he feels our love up in heaven. What a difference a year makes. What a difference 21 days and 1.5 pounds make.

As today draws to an end, we are still receiving messages. The candle is still burning. And we are still blown away.

~

I am the [person] who has seen affliction
by the rod of the Lord's wrath.
He has driven me away and made me walk
in darkness rather than light;
indeed, he has turned his hand against me
again and again, all day long.

He has made my skin and my flesh grow old
and has broken my bones.
He has besieged me and surrounded me
with bitterness and hardship.
He has made me dwell in darkness like those long dead.

He has walled me in so I cannot escape;
he has weighed me down with chains.
Even when I call out or cry for help,
he shuts out my prayer.
He has barred my way with blocks of stone;
he has made my paths crooked.

Like a bear lying in wait, like a lion in hiding,
he dragged me from the path and mangled me and left me without help.
He drew his bow and made me the target for his arrows.

He pierced my heart with arrows from his quiver.
I became the laughingstock of all my people;
they mock me in song all day long.
He has filled me with bitter herbs and given me gall to drink.

He has broken my teeth with gravel;
he has trampled me in the dust.
I gave up on life altogether.
I've forgotten what the good life is like.
I said to myself, "This is it. I'm finished.
God is a lost cause."

I'll never forget the trouble, the utter lostness,
the taste of ashes, the poison I've swallowed.
I remember it all - oh, how well I remember-
the feeling of hitting the bottom.
But there's one other thing I remember,
and remembering, I keep a grip on hope:

Because of the Lord's great love we are not consumed,
for his compassions never fail.
They are new every morning;
great is your faithfulness.
I say to myself, "The Lord is my portion.
therefore I will wait for him."

God proves to be good to the man who passionately waits,
to the woman who diligently seeks.
It's a good thing to quietly hope,
quietly hope for help from God.
It's a good thing when you're young
to stick it out through hard times.

Let him sit alone in silence,
for the Lord has laid it on him.
Let him bury his face in the dust-
there may yet be hope.
Let him offer his cheek to one who would strike him,
and let him be filled with disgrace.

For no one is case off by the Lord forever.
Though he brings grief, he will show compassion,
so great is his unfailing love.
For he does not willingly bring affliction or grief to anyone.

Lamentations 3:1-33 (New International Version and The Message)



Wednesday, July 24, 2013

The Impossible

We are home from a week in Colorado. Last week was as far from the typical vacation as one can get. It was more of a pilgrimage. Per the title, I am going to attempt the impossible by putting words to our experience. It will probably take several posts.

Mountains or beach? I have always preferred mountains. Maybe it's because I grew up here, maybe it's genetics, I don't know. But I have always felt the most peaceful, least stressed, and closest to God in the mountains.

We decided many months ago that we wanted to scatter some of Weston's ashes in the mountains (only a very small amount: we're keeping most of them so that he's always with us). I proposed Flagstaff, Telluride, or Switzerland (Shannon has Swiss ancestry, and, well, it's Switzerland). There's this thing called money, though, so Switzerland was out. Shannon chose Telluride.

Telluride has always held a special place in my heart. I've been going there, in summer and winter, since I was a teenager. Shannon and I have been there together four times now, and I was barely pregnant with Caroline the last time we were there.

We wanted to go over July 4th weekend and spread Weston's ashes on his actual birthday, July 7. Circumstances arose that are too boring to describe here, and we ended up leaving for our trip a week after his birthday. We were fine with that; we just wanted to be there at some point between Weston's birth and death dates.

If 2012 was my year of the black hole, July is my month of the black hole. Last year, we left for Park City, Utah three days after Weston's funeral and stayed there for a week. A week or so after we got back from Park City, we went to Connecticut for two weeks. We were just trying to escape from our nightmare. That was the plan for this Colorado trip: to escape from the ugly reality of life without our son during the month when we should be celebrating his one-year-old birthday.

My family has driven over Imogene Pass a few times. It is heaven on earth. I am not exaggerating; google some images. (No, I am not being compensated by the Town of Telluride to write this post.) I wanted to introduce my family to the Pass and scatter Weston's ashes there.

But then, fear set in. A couple of weeks before we left, I started thinking about the logistics of the drive. It is treacherous and requires a four-wheel-drive vehicle. By treacherous, think single-lane, rocky, washed-out roads climbing an 80-degree mountain ridge with a sheer drop-off inches from your car.

Now, I personally have not driven Imogene Pass, but I have been in the car with my dad driving. No cars went over the edge; no one fell off the ridge or the pass; no one died. But for some reason, my fear was paralyzing this time around. I don't know if it's simply because I'm a mom (and my mom has done this trip too, with all four of her children in the car) or because I'm a mom of a child who died. But there was just no way I could think about taking my baby up there.

So we decided to try Ophir Pass. Much tamer, right? And still a beautiful resting place for Weston. Well, it turns out that Ophir Pass is way scarier than the picture, especially when one is riding in a Toyota Corolla in the rain, although it's nothing compared to Imogene Pass.

This was last Tuesday. We made it partway up Ophir Pass with Caroline half-crying with hunger before I completely flipped out at the drop-off (and some people in an SUV very kindly told us we were idiots for attempting the drive in a Corolla). We were getting pretty discouraged.

So we turned around and drove back toward Telluride, trying to figure out what to do. We had planned so well, you know: picnic lunch packed, diaper for my city girl whom I knew would not pee in the woods, etc. Anyway, we saw this little sign pointing the way to Alta Lakes. Not knowing the road conditions, Shannon turned onto the dirt road. We passed a truck, and the driver said we'd make it up there just fine. It was about five miles.

Alta Lakes is sacred. There's no other word to describe it. It was very overcast that day and started raining after we ate lunch. It rained as we spread Weston's ashes and really picked up after we were finished. Perfect: the heavens grieved with us. Caroline was enamored with the lakes as well, and especially the baby ducks.

There were a handful of other people there, camping and/or fishing. It was so quiet, though. Caroline was a trooper; we walked around the entire lake, and she kept up just fine. As we ate lunch up there, I had a bit of a knot in my stomach thinking about the ritual we were about to complete. But I was also at peace. That's one of the things about grief: you can feel two completely opposite emotions at the same time, and it makes complete sense.

So, then it was time to find a spot for Weston. We started walking...and walking. The rain picked up, and I finally told Shannon it was really time to find a spot. He replied that he just wanted to find the perfect spot.

We had three "pinches" of ashes, one for each of us. We had tried to explain to Caroline what we were doing, but I'm not sure she understood that her brother was in the ashes. So we laid a part of Weston to rest in this heavenly place:



Shannon's turn (there is his arm on the right):






The moments of spreading Weston's ashes were sacred and indescribable, so I won't cheapen the experience with my inadequate words. The pictures give a little taste.






Caroline took this picture:


As I stated above, grief can encompass opposite emotions simultaneously. As soon as we finished spreading the ashes, this happened:




Silly girl. I love her so much it hurts.

It was a day I will never forget. Far from being an escape, we came face-to-face with our grief for the entire week and met God in the process. I try not to speak for Shannon on this blog, because it's about my journey, but we were profoundly touched by multiple events on this trip in very similar ways. I can't think of the last time we had similar emotional and spiritual experiences regarding Weston since the day of and days immediately following his death. I feel like the two of us are taking a big step forward, together, and I am so thankful.

I'll close tonight with this poem. One day in Telluride I walked to the little local bookstore while Caroline was napping and found this gem.

He did but float a little way
Adown the stream of time;
With dreamy eyes catching the ripples play,
Or listening their fairy chime.
His slender sail
Ne'er felt the gale;
He did but float a little way,
And, putting to the shore
While yet 'twas early day,
Went calmly on his way,
To dwell with us no more!
No jarring did he feel,
No grating on his vessel's keel;
A strip of yellow sand
Mingled the waters with the land,
Where he was seen no more:
O stern word - nevermore!
Full short his journey was; no dust
Of earth into his sandals clave;
The weary weight that old men must,
He bore not to the grave.

He seemed a cherub who had lost his way
And wandered hither, so his stay
With us was short, and 'twas most meet
That he would be no delve in earth's clod,
Nor need to pause and cleanse his feet
To stand before his god;
O blest word - evermore!

~James Russell Lowell

Rest in peace, my little love.


Sunday, July 7, 2013

A Birthday

How does one celebrate a child's birthday without the child? I learned the answer to that question today. Lucky me. Unlike the parents of most one-year-olds, I had been dreading this day for 344 days.

We went out of town for the holiday weekend, and we were with some of my family. Everything was very festive, as expected around July 4, so I hid out at the house for the most part. In a way, yesterday was worse than today, because we had at least anticipated and planned out today.

Although my grief has never left me since Weston died, it has been building for the last several weeks, until now it is almost as intense as the first days after his death. God has sent me several gifts and signs in anticipation of this horrible month, thankfully.

I made a cake last Wednesday night before we left town, so I could just quickly frost it when we got back today. I've turned into a pretty good cook and baker, but I managed to screw up the cake, and it got stuck to the pan when I was removing it. It looked awful, with a huge gaping hole...until I looked closer and discovered it was shaped like a heart.


As an aside, try not to salivate...it actually tasted pretty good.

I had hoped to spend some time alone in nature over the weekend. However, that plan had to be abandoned when a BEAR was sighted at the house. That is no joke.

For those of you who are my friends on Facebook, I started doing a little countdown on July 4, reflecting on what was happening on the same date last year. July 4 and 5 were such good days. July 6 was beyond terrible. I went back and read my blog posts chronicling July 6 and Weston's birth story (which spanned July 6 and 7) and found that I remember almost everything. Even rereading the rest of his birth story now, it's unnecessary: I still remember everything (except, of course, my son's actual birth). But, I had forgotten until today another pleasant aspect of July 4: I got to go outside that day. It was cooler out, only 100 degrees, so Shannon took me outside in my wheelchair.

July 7, 2012 was wonderful and terrible: wonderful because, of course, it was Weston's birthday. I got to meet him. It was terrible because I met him four months too soon, and his birth was incredibly traumatic to all of us.

So, last night: I had a good talk with my mom. I have been wrestling with some serious doubts lately, which I may or may not ever talk about here, and her insight was both sensible and comforting. Then Shannon and I talked and cried together for a while, and then he went to bed. I wondered if I would wake up at 2:19 a.m., the time of Weston's birth.

As it turned out, I didn't need to wake up, because I couldn't fall asleep in the first place. I laid in bed with Shannon. Then I went to the other room and laid in bed with Caroline. I was about to go lie on the couch until I remembered that the two-story windows would let in a lot of light very early. I think I finally dropped off to sleep around 3:00 a.m.

Morning dawned. I woke up to this photo from the MISS Foundation dedicated to Weston:


The hole in my heart...just like the cake. I'll add that I saw a couple of rainbows over the weekend.

(I don't believe the pain ever stops, and neither does the MISS Foundation, as stated in the caption, which is not visible here. I am hopeful, though, that the pain will ease someday.)

I finished a novel today. In it, millions and millions of monarch butterflies descend upon a small town in Tennessee hundreds, if not thousands, of miles north of where they should be in Mexico. They are quickly followed by scientists trying to figure out why. Oh, and the protagonist's first baby died. Today I read in the book that many people believe that monarchs are the souls of dead children. The little girl talking about this belief then looks up at the millions of butterflies in front of her and says, "So many." Indeed.

As we were leaving to drive back to Phoenix today, I walked out the front door of my mom's house and saw three butterflies.

I have asked people to do random acts of kindness in Weston's honor, and I have done some myself. On the way home, we stopped at the store so I could get one item for Weston's cake. As I was checking out, the man in front of me said he had forgotten his wallet and left to get it. It dawned on me after he walked away that this was my opportunity...I told the store employee that I would pay for his groceries. She was shocked and kept saying, "That's so nice of you." In my head, I was thinking, I'm not really that nice; I'm just doing this for my son. I quickly looked through my wallet for a Random Act of Kindness card, but I didn't have any. I wanted to tell the employee to tell him I was doing this for my son, Weston, on what should have been his first birthday with us, but I knew I wouldn't be able to open my mouth without bursting into tears. So I just smiled and left. I saw the man in the parking lot returning with his wallet, but I couldn't stop to tell him either.

So they will ever know why I did what I did. I suppose that's fine. I was just heeding the opportunity that Weston dropped in my lap.

Once at home, the tears really started...again. Caroline walked in the office during one of my crying spells, complete with mascara all over my face. She looked me and said, "Want a tissue?" I love that girl: so practical.

We each picked something from Weston's chest to put at the center of the dinner table in addition to the urn (Shannon's idea). Caroline chose his little dolphin, I chose his two little pillow rolls, and Shannon chose the little blanket he was wrapped in after he died. You know, a typical birthday party centerpiece:



Caroline decorated the cake with three little cars that she plays with. She blew out his candle. We sang Happy Birthday, but I couldn't choke out the words, so Shannon and Caroline had to carry the tune.

I'm glad today is almost over. Interestingly, I don't really remember much from the evening of Weston's birth. I was still on a lot of pain medications; maybe that's why. I will be playing the "this time last year we were..." game for the next three weeks.

I don't know what else to say. I wouldn't wish a day like today on any parent. Earlier, I tried to imagine what today would have been like if Weston were here, and I just couldn't do it. My heart won't let my mind go there yet.

Many people have mourned, cried, prayed, mailed cards, done random acts of kindness in Weston's honor, and otherwise reached out to me in these last couple of weeks. In that aspect, my cup runneth over, and I am truly grateful. Thank you for caring about Weston and our family.